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New Rare Disease Education for Healthcare Professionals Partnership

NORD and Frontline Medical Communications have announced a strategic alliance to increase awareness and understanding of rare diseases. Read the press release >

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Tell Senate to Pass Newborn Screening Reauthorization Act

Join NORD in supporting this important March of Dimes campaign. More >

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NORD President's Letter is Published in The New Yorker

Read a letter from Peter L. Saltonstall regarding a recent article on a family's incredible journey seeking a diagnosis. More >

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NORD Provides Input to 21st Century Cures Initiative

NORD has provided recommendations and testimony to advance the discovery, development, and delivery of treatments. More >

Events

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Rally for Medical Research

NORD is participating in the 2014 Rally for Medical Research Capitol Hill Day on Sept 18 in Washington, DC. More >

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International Conference on Rare Diseases and Orphan Drugs (ICORD)

The 9th ICORD meeting will take place in the Netherlands, October 7-9. More >

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Two Patient-Focused Drug Development Meetings Announced

FDA will host a public meeting on patient-focused drug development for heritable bleeding disorders on Sept 22, and a meeting on idiopathic pulmonary fibrosis on Sept 26. More here and here>

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2014 Global Pediatric Innovation Summit

Boston Children's Hospital will host its 2nd annual pediatric innovation summit October 30-31, 2014 in Boston. More >

WHAT IS NORD?

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases. More >

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