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FDA's Dr. Janet Woodcock highlights NORD's registry platform during 21st Century Cures Hearing

NORD attended the April 30 hearing, which contained many highlights for NORD and the rare disease community" More>

Read our Rare Mom Stories!

Help NORD celebrate Mother's Day by telling your rare mom story. More>


FPWR and NORD Launch Global Prader-Willi Syndrome Registry to Accelerate Research and Cures

New database aims to accelerate research and cures for Prader-Willi Syndrome. More>


NORD and FMC publish a special report on neurological diseases

NORD & FMC have published a special report on neurological rare diseases.



The Genzyme Running for Rare Diseases Marathon Team

The team will run in the Providence Marathon on May 3 to raise money for NORD's assistance program for patients applying to the NIH Undiagnosed Diseases Program. More >


Portraits of Courage (May 19)

NORD's annual gala celebrates the progress and achievements of the rare disease community.   More >

Regional Membership Meeting (April 30-May 1)

All patient organizations (members and non-members) are welcome to attend. Network, learn, and talk about issues of importance to the rare disease community.


Rare Disease Day: February 29, 2016

NORD is the official U.S. sponsor of this one-of-a-kind day that brings together communities from around the world to raise awareness about rare diseases. More >


The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases. More >

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