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New Rare Disease Education for Healthcare Professionals Partnership

NORD and Frontline Medical Communications have announced a strategic alliance to increase awareness and understanding of rare diseases. Read the press release >


Tell Senate to Pass Newborn Screening Reauthorization Act

Join NORD in supporting this important March of Dimes campaign. More >


2015 Medicare Prescription Drug Annual Open Enrollment

The Annual Open Enrollment for Medicare prescription drug coverage (Part D) is October 15, 2014 - December 7, 2014. More >


NORD Publishes Physician Guide to HoFH

The latest in NORD's collection of guides for physicians is on rare disease that can lead to heart attack in children and young adults. More >



Rally for Medical Research

NORD is participating in the 2014 Rally for Medical Research Capitol Hill Day on Sept 18 in Washington, DC. More >


International Conference on Rare Diseases and Orphan Drugs (ICORD)

The 9th ICORD meeting will take place in the Netherlands, October 7-9. More >


Two Patient-Focused Drug Development Meetings Announced

FDA will host a public meeting on patient-focused drug development for heritable bleeding disorders on Sept 22, and a meeting on idiopathic pulmonary fibrosis on Sept 26. More here and here>


2014 Global Pediatric Innovation Summit

Boston Children's Hospital will host its 2nd annual pediatric innovation summit October 30-31, 2014 in Boston. More >


The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases. More >

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